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Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study.

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  • Author(s): Atz, Teresa W
  • Source:
    Medical University of South Carolina 2013; Ph.D. 129 p-129 p. (1p)
  • Publication Type:
    Doctoral Dissertation - clinical trial, research
  • Language:
    English
  • Additional Information
    • Subject Terms:
    • Subject Terms:
    • Abstract:
      There is a paucity of research about the transition experiences of parents of chronically ill pediatric research subjects at the completion of a clinical trial. Similar research about parents of chronically ill children transitioning from more acute care or pediatric care to less acute or adult care describes feelings of loss, confusion, and a lapse of care. Research of parents of pediatric research subjects have mainly focused on motivations, therapeutic misconception (TM) and general experiences related to the enrollment phase of research. This dissertation aims to explore parents' experiences at the end of their child's clinical trial.The first manuscript introduces the concept of transition out of research through a dimensional analysis guided by Meleis' transition theory. The second manuscript, through thematic analysis of focus group discussions at a TM workshop, explores the perceptions of health care providers and investigators about TM and other factors in the informed consent process that may affect voluntariness and autonomy. Finally, the third manuscript is a mixed methods triangulation study describing parents' transition experiences out of research. In addition, by piloting the TM Scale and items from the Readiness for Discharge Scale, the study explores the presence and frequency of TM, the degree of preparedness to transition out of research, and various influencing variables. This dissertation creates a foundation for future development of nursing theory, research, and intervention development to assist parents in their transition out of research and into standard care.
    • Special Interest:
      Pediatric Care
    • ISBN:
      9781303774850
    • Accession Number:
      UMI Order AAI3579586
    • Publication Date:
      20140516
    • Publication Date:
      20150923
    • Accession Number:
      109864471
  • Citations
    • ABNT:
      ATZ, T. W. Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. 2013. Ph.D. - Medical University of South Carolina, [s. l.], 2013. Disponível em: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471. Acesso em: 23 nov. 2020.
    • AMA:
      Atz TW. Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. January 2013:129 p. Accessed November 23, 2020. http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471
    • APA:
      Atz, T. W. (2013). Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study [Ph.D., Medical University of South Carolina]. In Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study (p. 129 p).
    • Chicago/Turabian: Author-Date:
      Atz, Teresa W. 2013. “Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study.” Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. Ph.D., Medical University of South Carolina. http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471.
    • Harvard:
      Atz, T. W. (2013) Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study, Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. Ph.D. Medical University of South Carolina. Available at: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471 (Accessed: 23 November 2020).
    • Harvard: Australian:
      Atz, TW 2013, ‘Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study’, Ph.D. thesis, Medical University of South Carolina, Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study, p. 129 p, viewed 23 November 2020, .
    • MLA:
      Atz, Teresa W. “Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study.” Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study, Medical University of South Carolina, Jan. 2013, p. 129 p. EBSCOhost, search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471.
    • Chicago/Turabian: Humanities:
      Atz, Teresa W. “Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study.” Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. Ph.D., Medical University of South Carolina, 2013. http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471.
    • Vancouver/ICMJE:
      Atz TW. Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study [Internet] [Ph.D.]. Transition Experiences of Parents of Chronically Ill Pediatric Research Subjects at the Completion of a Clinical Trial: A Mixed Methods Study. Medical University of South Carolina; 2013 [cited 2020 Nov 23]. p. 129 p. Available from: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=109864471